Will, a seasoned professional in the film and television industry, found his life turned upside down in 2023—not by the industry-wide strikes, but by a mysterious and life-threatening illness.
That illness was VEXAS syndrome, a rare and recently discovered autoinflammatory condition that nearly claimed his life.
Initially plagued by unexplained symptoms such as severe fatigue, eye issues, rashes, anemia, and even blood cancer (myelodysplastic syndrome), Will endured months of medical uncertainty.
From ER visits to laser eye surgery, endless tests, and ineffective treatments, he battled relentless health declines without answers.
It wasn’t until he was referred to Emory University Hospital’s Winship Cancer Institute that hematologist Dr. Amelia Langston finally gave a name to his suffering: VEXAS syndrome.
The only known cure? A stem cell transplant—an intense, high-risk procedure with survival rates hovering around 60-70%.
With a perfect donor match and unwavering determination, Will underwent the transplant in October 2023.
After enduring chemotherapy, a grueling recovery, and the frightening nadir period when his immune system was at its weakest, Will emerged from the experience transformed—both physically and mentally.
Now 19 months post-transplant, Will is thriving. He’s regained strength, avoided complications like GVHD or infection, and learned a profound lesson in patience and perspective.
His journey is a powerful testament to the life-saving potential of stem cell transplants and the importance of scientific breakthroughs like the discovery of VEXAS syndrome.
Watch Will’s full story in the video below to learn more about his remarkable recovery and how cutting-edge medicine gave him a second chance at life.
